Wednesday, January 21, 2009

Not Just Work: Exploring relationships between people with disabilities and attendant


I was pointed to this website. It contains some interesting stories by support workers reflecting on their relationships with the people they support.
There is a particularly interesting reflection by somebody writing about her relationship with a woman who doesn't use speech.
I'll be interested in seeing where this website goes in the future, particularly in relation to reflecting relationships with people with PIMD.
http://notjustwork.info/

Wednesday, January 14, 2009

Gastrostomy resource


New Resource and it is Australian!

There is a new resource out on supporting people who receive nutrition through gastrostomy. I haven't had a look at it yet, but the short snippet on the website looks good. Will let you know more when I've had a good look.


Saturday, January 3, 2009

Nate Hajdu's poem on friendship

I read this poem in a book (which I'll talk more about soon). On many levels in resonated with me (whilst not being religious) and thought I'd share it. It came from the Jubilee Association of Maryland website: http://www.jubileemd.org/template/page.cfm?page_id=45

My Friend Charlie
Nate Hajdu shared this heart-felt poem at the Interfaith Disability Pre-Summit in Washington, DC on September 22, 2005.

My Friend Charlie

He is my friend: I am his friend
I help him out: He helps me to learn
I help him to learn: He helps me to grow
I help him to grow: He teaches me to accept

His struggle: Is my struggle
His vulnerability: Leads to my respect
My respect: Leads him to trust
His trust: Leads to my devotion

His availability: Feeds my desire to be needed
I keep his secrets: He keeps mine
We have an arrangement
His lack of self-consciousness: Leads to my tolerance
His constant need for stimulation: Leads to my patience
His discomfort: Sharpens my sensitivity
His unhappiness: Is my challenge
His presence: Eases my isolation
His loyalty: Leads to my loyalty
Which leads to mutual appreciation

His brokenness: Makes me accept my own brokenness
Which leads to healing
His humanity: Leads to personal connection
His steadfastness: Centers me

His smile: Is my reward
His joy: Lifts my spirits
His happiness: Gives me a sense of purpose
His struggles: Expose my anxieties
Which tests me
Then strengthens me
And in turn bolsters my faith

In guiding: I am guided
In helping: I am helped
In teaching: I am taught

In his laughter: There is joy
In that joy: There is energy
In that energy: There is spirit
In that spirit: There is grace