tag:blogger.com,1999:blog-49358864809553296122024-03-14T19:08:48.827+11:00PIMDA: Profound Intellectual & Multiple Disability AustraliaWelcome to PIMDA. PIMDA stands for profound intellectual and multiple disabilities Australia. PIMDA is Sheridan Forster's weblog about issues to do with people with profound intellectual and multiple disabilities (PIMD) in Australia. The purpose of PIMDA is to increase awareness of people with PIMD and the issues pertaining to this population. The other purpose of PIMDA is to build a network of interested people who can then work together to improve the lives of people with PIMD.Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.comBlogger81125tag:blogger.com,1999:blog-4935886480955329612.post-27271127810466755322014-09-25T13:27:00.000+10:002014-09-25T13:27:07.146+10:00BIts and bobsIt's been awhile since I've written, but it doesn't mean I've not been busy.<br />
I've been focusing my attentions elsewhere. I've been fortunate to be part of a Facebook called SPIDA: Severe and profound intellectual disability Australia. It's been a great community for discussion and hopefully further future lobbying.<br />
I've been busy promoting Video Interaction Guidance, a technique that I think is invaluable in supporting people with PIMD.<br />
Have been to a number of conferences and events including Intensive Interaction conference, Young people with complex care needs, Scope's Communicate Participate Enjoy, and ASID NZ.<br />
Also keeping my toes in the research with doing lots of journal article reviews, beavering away on my own articles, and keeping abreast of new issues. I've been fortunate to have a chapter in an upcoming book on Video Enhanced Reflective Practice (in line with Video Interaction Guidance) and Medical Care of People with Developmental Disabilities.<br />
Also been increasing my private practice work, and loving being with people with disabilities again, after two many years in an office.<br />
I'm also thinking of folding this blog and moving it just to my own private practice blog. I guess I started the blog a number of years ago in hope to further develop a community of interest around people with PIMD. I don't think the blog has really achieved that goal; perhaps in a very small way. I guess I still dream of a day when Australia does have an association/strong group of researchers/practitioners/parents/providers who can raise the voice of people with PIMD.Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com2tag:blogger.com,1999:blog-4935886480955329612.post-87427479061250481402013-10-24T20:00:00.001+11:002013-10-24T20:00:59.478+11:00Do you know what they see?I suspect that a huge number of the adults with PIMD that I meet have undiagnosed cortical vision impairment. The compromised understanding of what the person can see, and the strategies that could optimise their use of existing skills, has an impact on quality of life.<div>I watched a great 30 webinar on CVI today, and I'd encourage everyone supporting adults with PIMD to watch it. Substitute the word child for adult - I don't know what evidence there is for improving functional vision in adults, but I do know that understanding impairments can help a person optimally use the skills that they do have.</div><div><a href="http://www.perkins.org/resources/webcasts/cvi-and-the-evaluation-of-functional-vision.html?utm_campaign=cvi%20and%20the%20evaluation%20of%20functional%20vision&utm_source=webcast%20announcement&utm_medium=email">http://www.perkins.org/resources/webcasts/cvi-and-the-evaluation-of-functional-vision.html?utm_campaign=cvi%20and%20the%20evaluation%20of%20functional%20vision&utm_source=webcast%20announcement&utm_medium=email</a><div class="separator" style="clear: both;"><a href="http://www.perkins.org/resources/webcasts/cvi-and-the-evaluation-of-functional-vision.html?utm_campaign=cvi%20and%20the%20evaluation%20of%20functional%20vision&utm_source=webcast%20announcement&utm_medium=email"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiceXL-6MJTOKUCApar4pms2ldLwwgGdMYAjSnxAQiejJ9zQb2FA1dA-LQbDjILoZ-fBUAwCmTo13sHtFPNbyI9P8oUUIQH4ISgNEXgZ2-zk8dy6CQwjl-NUD3u7lZ3bEesS6vAFgj-zhHg/s640/blogger-image-662151238.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiceXL-6MJTOKUCApar4pms2ldLwwgGdMYAjSnxAQiejJ9zQb2FA1dA-LQbDjILoZ-fBUAwCmTo13sHtFPNbyI9P8oUUIQH4ISgNEXgZ2-zk8dy6CQwjl-NUD3u7lZ3bEesS6vAFgj-zhHg/s640/blogger-image-662151238.jpg"></a></div></div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com1tag:blogger.com,1999:blog-4935886480955329612.post-9288054402859112782013-10-12T17:12:00.001+11:002013-10-12T17:12:58.862+11:00Pimda conversations reaching the UKI few of the PIMDA articles were recently reproduced in PMLD-LINK magazine. http://www.pmldlink.org.uk<div><br><div>This is a great UK magazine that focuses on people with profound intellectual and multiple disabilities. It contains articles, resources, training... Always thought provoking.<div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKAepW6ew5PwKRVntIZAVc-BNCID9YLqA0aTIYTfa176P957gl5ujqUzk5NsE8Zs0FAVVAOm53boUdrJgPLQ79d13CzS_0oMrEEHah9kKsf1_IyNvcwUZ4YRPEck7kF32UJA_iHJCVpM4g/s640/blogger-image--562137175.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKAepW6ew5PwKRVntIZAVc-BNCID9YLqA0aTIYTfa176P957gl5ujqUzk5NsE8Zs0FAVVAOm53boUdrJgPLQ79d13CzS_0oMrEEHah9kKsf1_IyNvcwUZ4YRPEck7kF32UJA_iHJCVpM4g/s640/blogger-image--562137175.jpg"></a></div></div></div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-14460969614267849112013-08-02T17:35:00.001+10:002013-08-02T17:35:38.272+10:00Intensive Interaction Down Under conference next yearFor people interested in Interaction with people with PIMD, check out the 2014 Intensive Interaction conference <span style="font-family: '.HelveticaNeueUI'; font-size: 15px; line-height: 19px; white-space: nowrap; -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); ">http://www.ammp.com.au/iid3/</span><div><span style="font-family: '.HelveticaNeueUI'; font-size: 15px; line-height: 19px; white-space: nowrap; -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); "><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4JVL5423SmJjHz_tt_Hr82sP2fLYt5oR3IWXAKjr6E-iiuwalQdRdbj-IKhP_gbdlm-0M6bu3ZDOGlVb9eOQchM_1rRqP42ImjrVA8pRWqkI00AA6PDt6w0nt70FErxQrrticqgx9An00/s640/blogger-image--254202563.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4JVL5423SmJjHz_tt_Hr82sP2fLYt5oR3IWXAKjr6E-iiuwalQdRdbj-IKhP_gbdlm-0M6bu3ZDOGlVb9eOQchM_1rRqP42ImjrVA8pRWqkI00AA6PDt6w0nt70FErxQrrticqgx9An00/s640/blogger-image--254202563.jpg"></a></div><br></span></div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-64432735661777994162013-07-26T11:35:00.001+10:002013-07-26T17:55:41.311+10:00Bigger is better bias: or the knee jerk reactionPicture this, I tell someone I like folk music. Their response, instead of saying "really", or "what type?" or something like that, is to say "maybe you could be part of the band". I use this analogy to introduce the frequent responses that I hear when we say something that a person with PIMD can do. Can you guess what they might be?...<div>Sometimes it might be... "How could we turn that into a functional skill". Sometimes it might be "how could we get them into the community"</div><div>Now don't get me wrong. I don't have a problem with the community or functional skills. What I do have a problem with is when those lines are given so immediately without first really valuing what the person is already doing. It's almost as though what people are already doing is second best to the prospect of doing it as a functional skill or in the community.</div><div>Is bigger always better? Is the potential functional skill always better? Is doing it in the community always better? </div><div>Perhaps what I talked about in my age appropriateness article fits here too. Are these things operating as enablers or barriers in people's lives? I think if the question is based on an inherent devaluing of what the person is currently doing, and there will be significant challenges in the person acquiring the proposed next step, then I do think they can be barriers: the person is left in a situation that many people see as second best and devalued (youll only be valued when your skill is functional or community based). But, if the current non functional and non community based skill is first truly valued and then the other thing is opened as an opportunity, then they can be enablers.</div><div>So next time I say I like folk music first understand why and what I like about it, not with the agenda of then modifying me to be more functional or community based. Then, after you truly understand my like you can propose making it more functional or community based.</div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com1tag:blogger.com,1999:blog-4935886480955329612.post-44258583223410108802013-07-22T17:33:00.001+10:002013-07-22T17:33:53.219+10:00Approaching Best Practice for adults with PIMD in day services<div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3AOMxR51OnWs_m2gFNU7FKR1oxSU5-FFpsMqsJvjeOx_ZXPGmKGwcug2dF4Mri892ViWeISzachRWyH310sFVxwfTdE6z6YtU2mGBkkhQY78c7hADly8tE2nn4bkY4eA8DjGBwDGrVVik/s640/blogger-image--246739822.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3AOMxR51OnWs_m2gFNU7FKR1oxSU5-FFpsMqsJvjeOx_ZXPGmKGwcug2dF4Mri892ViWeISzachRWyH310sFVxwfTdE6z6YtU2mGBkkhQY78c7hADly8tE2nn4bkY4eA8DjGBwDGrVVik/s640/blogger-image--246739822.jpg"></a></div>I had the pleasure of spending a day at WALCA in Bexley, NSW, last week.<div>There were many things about the service that make me suggest they are approaching best practice.</div><div>Most notable was their InterCom service in IGLO:). This part of the day service included two staff dedicated to supporting the communication of the service users. The staff had built particular expertise in Intensive Interaction and other communication strategies. They had an area of the day service where they could bring clients for one to one work. In addition, they had other staff spend a day in the part of the service so that they could model and share what they'd learnt. </div><div>They showed and discussed a video that they had made of the work. They impressed me with their ability to describe the outcomes for service users and how these had been bought about: people who were now taking turns in sound play, people who had started the service screaming most of the day and now smiling in interactions... Very impressive, and showing the value of day services when time is dedicated to staff learning and nurturing their ability to bring about and describe outcomes.</div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-37673198263999693312013-06-27T14:06:00.001+10:002013-06-27T14:06:10.487+10:00Raising Our Sights: Practice GuidesThe Practice Guides for Raising Our Sights are out. Check them out on the Mencap website.<div><span style="font-family: '.HelveticaNeueUI'; font-size: 15px; line-height: 19px; white-space: nowrap; -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); ">http://www.mencap.org.uk/all-about-learning-disability/information-professionals/pmld/raising-our-sights-guides</span><div>There are links to the guides and videos linked onto YouTube.</div><div>I'm just watching the Clinical Procedures video and it's great.</div><div>Well done!</div><div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVW1u1tFOx6fG6FggIwBH6sOk3jwQLGAEg6hnJRl4LdLy74mkBk7QtZTRJ88faSzhgeYR-lkookFX6a4gzGDckQhAG_LvGWL5xbtnahrJhe-1skqDN0xrO3xNHSXgZi1Z105CtlF_Q2WlM/s640/blogger-image--537914937.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVW1u1tFOx6fG6FggIwBH6sOk3jwQLGAEg6hnJRl4LdLy74mkBk7QtZTRJ88faSzhgeYR-lkookFX6a4gzGDckQhAG_LvGWL5xbtnahrJhe-1skqDN0xrO3xNHSXgZi1Z105CtlF_Q2WlM/s640/blogger-image--537914937.jpg"></a></div></div></div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-88406412691650162492013-06-24T13:38:00.001+10:002013-06-24T13:38:07.765+10:00Dr Jan van Dijk coming to Melbourne<div><br></div><div><span style="font-family: '.HelveticaNeueUI'; font-size: 15px; line-height: 19px; white-space: nowrap; -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); ">http://enews.threeware.com.au/subscribers/view_online/0_3647/1668566/M1J8E5wsqFDz9veWAh28JIS9ounouey8</span></div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8qJ29kHY42KergOkZ1jUpVJ9GYOq_W3MCTCgaPNMeC0FO28AA5CcG94spJvo3Lq2z41s9lT2MZAQG-npEg8_CdUHPQDNl6bLeQIpCnpsWRP2nz_sR2ET5CXQL_uLjl4bPxjiDPf1-_MAh/s640/blogger-image-551764816.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8qJ29kHY42KergOkZ1jUpVJ9GYOq_W3MCTCgaPNMeC0FO28AA5CcG94spJvo3Lq2z41s9lT2MZAQG-npEg8_CdUHPQDNl6bLeQIpCnpsWRP2nz_sR2ET5CXQL_uLjl4bPxjiDPf1-_MAh/s640/blogger-image-551764816.jpg"></a></div><div class="separator" style="clear: both;">I am a huge fan of Van Dijk's work - and hoping he'll touch on adults in his session in Melbourne as well.</div><div class="separator" style="clear: both;">His work relates to one of my biggest annoyances - when therapists leap into object symbols programmes without attending to the areas of resonance, attachments and co-active movement (going back to the origins of the work).</div><div class="separator" style="clear: both;">See you there maybe!</div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com1tag:blogger.com,1999:blog-4935886480955329612.post-37301390082385104032013-06-11T17:55:00.001+10:002013-06-11T17:56:40.553+10:00Children’s commissioner: Rules on touching ‘wrong’ - Scotland -
Scotsman.comThis was front page of the Sunday Scotsman newspaper. Very interesting article calling to reexamine the touch aversive environment of children's environments.<br>
Do we need the a similar reconsideration in the support systems of adults with PIMD?<br>
<a href="http://www.scotsman.com/scotland-on-sunday/scotland/children-s-commissioner-rules-on-touching-wrong-1-2960417#.UbbWHnISg28.blogger">Children’s commissioner: Rules on touching ‘wrong’ - Scotland - Scotsman.com</a><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEif24FQjMR1Zykq1GUB1Y8gdci4sNM0A9jND908cUS_upz_aIftsBodthhmSvDB_YJmSA_RIw0YsRaGJlWZHceHR0zmiPrJHbgHX7YyE45GyDmBQdA0XM-nVQ6SWzzf9wTz09_i_1P9BLS2/s640/blogger-image-437456941.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEif24FQjMR1Zykq1GUB1Y8gdci4sNM0A9jND908cUS_upz_aIftsBodthhmSvDB_YJmSA_RIw0YsRaGJlWZHceHR0zmiPrJHbgHX7YyE45GyDmBQdA0XM-nVQ6SWzzf9wTz09_i_1P9BLS2/s640/blogger-image-437456941.jpg"></a></div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-3148141664197375522013-06-01T14:23:00.001+10:002013-06-01T14:23:42.791+10:00Raising Our Sights UK ... next stepsI was really excited to hear that the UK PMLD Network and Mencap have produced how to guides and films in follow up to Jim Mansell's Raising Our Sights report. These will be launched in the UK later this month. <div>I've requested a copy and will let you all know when I receive it. I wonder if they'll have the available online too?</div><div>For more info go to <span style="font-family: '.HelveticaNeueUI'; font-size: 15px; line-height: 19px; white-space: nowrap; -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); ">http://www.mencap.org.uk/pmld-network-conference-2013<div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">From the website</div></span></div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHIwbQ5YwdEXu2ukLm4loAN4tCTtOtk-ASAOs1Mn1417ijQ6bsILMIH-xhgAimxQTSivduiPMIM5i_A-jy74uv-EeZjU7OAN30lK4iX3Foh5xE814rRLyDoM7iNQaYwr620GKEGQqyjT4J/s640/blogger-image-188465218.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHIwbQ5YwdEXu2ukLm4loAN4tCTtOtk-ASAOs1Mn1417ijQ6bsILMIH-xhgAimxQTSivduiPMIM5i_A-jy74uv-EeZjU7OAN30lK4iX3Foh5xE814rRLyDoM7iNQaYwr620GKEGQqyjT4J/s640/blogger-image-188465218.jpg"></a></div>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-41724490599467447242013-05-20T18:31:00.001+10:002013-05-20T18:31:27.485+10:00Doll therapy in aged careJust read this on the Spark of Life website. It resonated with me as something that might relate to some people with PIMD.<br />
<br />
<br />
<div style="margin-bottom: 0.75em; padding: 0px; text-align: -webkit-auto;">
<span style="background-color: rgba(255, 255, 255, 0);"><i>If you support the use of doll therapy, you are likely to have had positive, personal experience that dolls have strong symbolic meaning and provide purpose, nurture and healing for people with dementia. As a result you are most likely passionate about these outcomes and will fight for Doll Therapy to be an integral part of the therapy program.</i></span></div>
<div style="margin-bottom: 0.75em; padding: 0px; text-align: -webkit-auto;">
<span style="background-color: rgba(255, 255, 255, 0);"><i>On the opposite side, you may have thoughts such as: <span style="margin: 0px; padding: 0px;">I'd rather die than imagine myself as an old person in a nursing home, walking around with a doll.</span> You are genuinely concerned that introducing dolls can be childish, demeaning, maybe even patronising and often feel so strongly about your point of view that you ensure dolls are not permitted in your facility.</i></span></div>
<div style="margin-bottom: 0.75em; padding: 0px; text-align: -webkit-auto;">
<span style="background-color: rgba(255, 255, 255, 0);"><i>If you belong to this side, undoubtedly, you genuinely want the best for people with dementia and respect and dignity are high on your agenda. The way you assess whether Doll Therapy is acceptable or not is based on the thinking: <span style="margin: 0px; padding: 0px;">Do unto others as you would like done unto you</span>. This is a perfectly logical and rational conclusion.</i></span></div>
<div style="margin-bottom: 0.75em; padding: 0px; text-align: -webkit-auto;">
<span style="background-color: rgba(255, 255, 255, 0);"><i>This same logical, rational thinking is still active in most people in the early stages of dementia. However there is a distinct difference in the way <b style="margin: 0px; padding: 0px;">a person </b>who has moved <b style="margin: 0px; padding: 0px;">beyond the early stages of dementia</b> thinks. T his person may now have lost much of their memory and their logical, rational thinking as well as their social inhibitions. The beliefs and values they used to uphold are no longer important to them. They live in the moment - and that is all that matters!</i></span></div>
<div style="margin-bottom: 0.75em; padding: 0px; text-align: -webkit-auto;">
<span style="background-color: rgba(255, 255, 255, 0);"><i>When you care for a person in the <b style="margin: 0px; padding: 0px;">later</b> stages of dementia, it can serve you both well to consider a change of thinking from: <b style="margin: 0px; padding: 0px;"><span style="margin: 0px; padding: 0px;">How will the person respond to this activity</span></b>? To: <b style="margin: 0px; padding: 0px;"><span style="margin: 0px; padding: 0px;">What activity will this person respond to?</span></b></i></span></div>
<div style="margin-bottom: 0.75em; padding: 0px; text-align: -webkit-auto;">
<span style="background-color: rgba(255, 255, 255, 0);"><i><b style="margin: 0px; padding: 0px;"><span style="margin: 0px; padding: 0px;"><a href="http://www.dementiacareaustralia.com/index.php?option=com_content&task=view&id=60&Itemid=81" target="_blank">http://www.dementiacareaustralia.com/index.php?option=com_content&task=view&id=60&Itemid=81</a></span></b></i></span></div>
Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com1tag:blogger.com,1999:blog-4935886480955329612.post-60508551354816812172013-03-12T14:24:00.000+11:002013-03-12T14:24:24.633+11:00Great new film onlineI just found out about a really great film that is available online.<br />
Here's info about it...<br />
<a href="http://www.youtube.com/watch?v=Hp4PW17U_h8">http://www.youtube.com/watch?v=Hp4PW17U_h8</a><br />
<b>"If you listen, you will hear us"</b><br />
<br />
<span style="background-color: rgba(255, 255, 255, 0);"><i>A Leicestershire-produced DVD and guidelines aimed at involving people with profound and multiple learning disabilities (PMLD) in the planning and commissioning of services that they use has been launched.<br /><br />'If You Listen, You Will Hear Us' project gives a voice to all people with PMLD. It has been produced by the Leicester and Leicestershire Learning Disability Partnership Boards along with frontline staff, carers and people with learning disabilities themselves. </i></span><br />
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<br />Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-46133120143849246912012-11-28T15:00:00.001+11:002012-11-28T15:00:46.713+11:00Changing Places Victoria - A great successI had the pleasure of attending the Changing Places Victoria launch on Monday. It was very exciting to see a great number of people attending the launch and passionate about getting Changing Places happening here.<br />
It was great to check out the mobile Changing Places loo and see how popular this has been for councils. It was also great to hear about the upcoming bathrooms for Ringwood.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKNYTM-Nb6qp-vTg_28-DVfq8P5VZSolGY46wTMXGZyQ3zCPe1N0YbVCUW-qkrSX005LIcm15UucTIyWs9-F03Nzr3y6-QnZVR0bJ9CZnXymVpu-OAcuhKiDfE7wwTgr6hdBuNNsO112Ci/s1600/photo-1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="239" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKNYTM-Nb6qp-vTg_28-DVfq8P5VZSolGY46wTMXGZyQ3zCPe1N0YbVCUW-qkrSX005LIcm15UucTIyWs9-F03Nzr3y6-QnZVR0bJ9CZnXymVpu-OAcuhKiDfE7wwTgr6hdBuNNsO112Ci/s320/photo-1.JPG" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGzcohWv-qnCXxc8eveW-j4dA68iM_n5OXmselbg-QR5kqFWr6Xfexho0MgbBUkFMHCfA08A5FztyAgfUDgdCBcqyjj4PnlGSuKHZB5J4qnYvTXoxIxz1sTRlZeq7pE-bESxblF63SHIwT/s1600/photo.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="239" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGzcohWv-qnCXxc8eveW-j4dA68iM_n5OXmselbg-QR5kqFWr6Xfexho0MgbBUkFMHCfA08A5FztyAgfUDgdCBcqyjj4PnlGSuKHZB5J4qnYvTXoxIxz1sTRlZeq7pE-bESxblF63SHIwT/s320/photo.JPG" width="320" /></a></div>
Let's hope that, like UK, in 5 years time we'll be able to announce the many hundreds of places where people with disabilities can go to because they now have access to an adult height adjustable change table, hoist and real space for assistance.Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-25560498264888475962012-10-24T10:36:00.001+11:002012-11-28T15:01:26.488+11:00Intensive Interaction course at Deakin UniCross posting for Mark<br />
<br />
barber.mark.m@edumail.vic.gov.au<br />
<br />
<br />
<span style="background-color: rgba(255, 255, 255, 0);">Dear colleague, the accredited Masters Level Unit of Study: Intensive Interaction: Theory to Practice is available again in 2013, at Deakin University Burwood Campus</span><br />
<div class="ecxMsoNormal">
<span style="background-color: rgba(255, 255, 255, 0);">Intensive Interaction is an approach to supporting the communication of learners with complex intellectual disabilities and often severe communication impairments which originated in UK and has been gaining increasing interest in Australia since its introduction in 2003.</span></div>
<span style="background-color: rgba(255, 255, 255, 0);"><br />
</span><br />
<span style="background-color: rgba(255, 255, 255, 0);"><div class="ecxMsoNormal">
The approach is recognised an evidence based practice by APS</div>
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<br />
WHERE :<br />
Deakin University, Burwood Campus.<br />
HOW:<br />
Participants complete the required readings prepared for this unit. Tutorial support is provided by email.<br />
The unit follows 3 phases of on-campus days at Burwood Site, through the trimester with face-to-face teaching by the unit lecturer</div>
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· Phase 1.....<span dir="ltr"></span>3 consecutive days in January</div>
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· Phase 2......<span dir="ltr"></span>a weekend in March</div>
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· Phase 3.....3 days in April</div>
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<b></b><br /></div>
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<br /></div>
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<b>NB To gain accreditation for learning</b>, participants should attend all 8 days and complete 1x 3000 word assignment and 1x 3000 word reflective diary.</div>
<br />WHEN : Begins January 2013<br />WHO : anyone who works with people with complex or profound intellectual disabilities<br /><br />Contact <strong>Anne Savige </strong>Manager of Educational Projects <strong></strong><a href="mailto:anne.savige@deakin.edu.au">anne.savige@deakin.edu.au</a>+61 <a href="tel:3%20924%2046384" x-apple-data-detectors-result="0" x-apple-data-detectors-type="telephone" x-apple-data-detectors="true">3 924 46384</a><br /><br /><br id="ecxFontBreak" /><em>NB More detail is available in the attachment</em><br />
</span><span style="background-color: rgba(255, 255, 255, 0);">regards</span><br />
<br />
<div>
<span style="background-color: rgba(255, 255, 255, 0);">Mark</span><br />
<span style="background-color: rgba(255, 255, 255, 0);">Mark Barber PhD</span><br />
<span style="background-color: rgba(255, 255, 255, 0);">Intensive Interation Coordinator</span><br />
<span style="background-color: rgba(255, 255, 255, 0);">Bayside SDS</span><br />
<span style="background-color: rgba(255, 255, 255, 0);">Genoa Street</span><br />
<span style="background-color: rgba(255, 255, 255, 0);">Moorabbin</span><br />
<span style="background-color: rgba(255, 255, 255, 0);">Vic 3189</span></div>
Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com1tag:blogger.com,1999:blog-4935886480955329612.post-35416190471809165052012-10-11T15:54:00.002+11:002012-10-11T15:55:10.379+11:00The Lost Generation<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjK-klmogQxMhTTnL88hehL5Ho6mPVkQtrgLYSxydtcD87QIVPb797pTawqmxL3D1ZBMJMu3WZsSDpqWDQZhyphenhyphenuzF6tSGM4MTmP9y-35voZu5ig28NxIGql1tuqGf1YhHizckq95FJVn4F2T/s1600/Lost+Generation.bmp" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="90" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjK-klmogQxMhTTnL88hehL5Ho6mPVkQtrgLYSxydtcD87QIVPb797pTawqmxL3D1ZBMJMu3WZsSDpqWDQZhyphenhyphenuzF6tSGM4MTmP9y-35voZu5ig28NxIGql1tuqGf1YhHizckq95FJVn4F2T/s320/Lost+Generation.bmp" width="320" /></a></div>
It was great to be reminded the other day of The Lost Generation project by DADAA, and even more exciting to be pointed to them on the <a href="http://www.disseminate.net.au/lost_generation_project_2" target="_blank">Disseminate website</a>.<br />
In 2008 I first heard about the project. The project involved films of people with disabilities in WA, Storytellers. I remember as a room full of professionals discussed a film of a man sitting in the sand running his fingers and making patterns. Some proposed that it should be called sand sculpting. Some questioned the value of showing a man "in his own world". How should this man be presented to this world?<br />
You can catch a brief glimsp of David in Episode 4 of the <a href="http://www.disseminate.net.au/findings_story_lost_generation_project" target="_blank">Findings documentary</a>.<br />
The whole project is worth a look!Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-83872633287639800132012-09-12T10:10:00.004+10:002012-09-12T10:20:51.016+10:00Changing Places in Victoria EXCITING!<div style="text-align: center;">
<b>Shared post from Jack Mulholland</b></div>
<span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span><i><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;">Hello <a href="x-apple-data-detectors://0" x-apple-data-detectors-result="0" x-apple-data-detectors="true">on Monday November 26</a> at the Karralyka Centre in Ringwood we are launching a project that will have a huge significance in the social inclusion of people with a profound or severe disability as a result of an increase of public and private buildings that contain an accessible toilet that has been purposely designed for their requirements. </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-size: small;"><br /></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;"><br />The Changing Places project will pilot in Victoria with the aspiration to go Nationally in the future. This project is based on world's best practice and that is a highly successful </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><a href="http://www.changing-places.org/"><span style="color: blue; font-family: Calibri; font-size: small;"><b><u>UK web based campaign (Changing Places)</u></b></span></a></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;"> that commenced in 2006. </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-size: small;"> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;"><br /><br />Changing Places is a accessible toilet that contains a ceiling hoist and adjustable adult change table. In regards to bathroom needs, these facilities are required for people with a profound or severe disability, without these facilities the person with a disability and their carer face the following options</span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-size: small;"> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span></i><br />
<ul style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;">
<li><i><span style="font-family: Calibri; font-size: small;">to go home</span><span style="font-size: small;"></span></i></li>
<li><i><span style="font-family: Calibri; font-size: small;">to sit in wet continence pads</span><span style="font-size: small;"></span></i></li>
<li><span style="font-family: Calibri; font-size: small;"><i>to change on the floor of an accessible toilet</i></span></li>
</ul>
<i><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;">Under under currents standards 1428.1 the minimum requirements for a disabled toilet facility does not require a ceiling hoist or adult change table and therefore we find very few accessible toilets with a ceiling hoist and change table available. Since the UK commenced the Changing Places campaign in 2006, there are now over 400 Changing Place facilities available across the UK in public places such as shopping centres, train stations, airports, entertainment venues. <br /><br />This invitation only event will run <a href="x-apple-data-detectors://1" x-apple-data-detectors-result="1" x-apple-data-detectors="true">from 12.15pm to 3pm</a> and will include lunch.</span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-size: small;"> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"> </span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;">If you were wanting us to invite a fellow colleague, please email me their contact details asap.</span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"> </span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Calibri; font-size: small;">A formal invitation will be sent to you in the near future outlining the details of the event. </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><br /></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: sans-serif; font-size: x-small;"><br /></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: x-small;"><br />Regards<br /><br />Jack </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: small;"><b><br />Mulholland </b></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: x-small;"><br />MetroAccess Officer</span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><img src="cid:_1_0E1B91D80E1B8F240009FAA4CA257A75" /></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: x-small;"><br /><br />Maroondah City Council | Braeside Ave Ringwood<br /><a href="tel:9294%205750" x-apple-data-detectors-result="2" x-apple-data-detectors="true">9294 5750</a> | <a href="tel:0418%20381%20154" x-apple-data-detectors-result="3/0" x-apple-data-detectors="true">0418 381 154</a> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="color: blue; font-family: Arial; font-size: x-small;"><u><br /></u></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><a href="mailto:jack.mulholland@maroondah.vic.gov.au"><span style="color: blue; font-family: Arial; font-size: x-small;"><u>jack.mulholland@maroondah.vic.gov.au</u></span></a></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: x-small;"> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="color: blue; font-family: Arial; font-size: x-small;"><u><br /></u></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><a href="http://www.maroondah.vic.gov.au/"><span style="color: blue; font-family: Arial; font-size: x-small;"><u>www.maroondah.vic.gov.au</u></span></a></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: x-small;"> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="color: blue; font-family: Arial; font-size: x-small;"><u><br /></u></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><a href="http://www.strokeachord.com/"><span style="color: blue; font-family: Arial; font-size: x-small;"><u>www.strokeachord.com</u></span></a></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="font-family: Arial; font-size: x-small;"> </span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="color: blue; font-family: Arial; font-size: x-small;"><u><br /></u></span></span><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; font-family: Helvetica;"><span style="color: blue; font-family: Arial; font-size: x-small;"><u><a href="http://www.maroondah.vic.gov.au/CBP.aspx">www.maroondah.vic.gov.au/CBP.aspx</a></u></span></span></i>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-19260784721012162462012-08-10T10:50:00.003+10:002012-08-10T10:50:27.990+10:00'Stuck at Home' report from MencapThis was also in the latest edition of PMLD LINK.<br />
<span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-text-size-adjust: auto; color: #333333; font-family: Helvetica, Arial, 'Nimbus Sans L', sans-serif; font-size: 14px; line-height: 21px;"><div class="summary" style="color: #333333; font-family: helvetica, arial, sans-serif; font-size: 17px; margin-bottom: 1em; margin-left: 0px; margin-right: 0px; margin-top: 1em;">
Mencap report reveals that 1 in 4 adults with a learning disability are stuck at home due to cuts to day services</div>
</span>This report highlights the number of people in the UK who now don't access any day service. The blurb highlights funding cuts to be a reason for day services closing. But I can't help wondering if the systematic devaluing of the services and the agenda for individualisation has also resulted in people getting lost in the cracks?<br />
I must read the <a href="http://www.mencap.org.uk/news/article/stuck-home" target="_blank">whole report</a>.Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-18856956138257360222012-08-10T10:26:00.000+10:002012-08-10T10:28:38.002+10:00Palliative careI just received the latest issue of <a href="http://www.pmldlink.org.uk/" target="_blank">PMLD LINK</a> from the UK.<br />
<a href="http://www.pmldlink.org.uk/"></a>
Some of you may be familiar with Victoria, who features in Jim Mansell's <a href="http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_114346" target="_blank">Raising Our Sights</a><a href="http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_114346"></a> video. In the latest PMLD LINK edition there is a great article by her mum, Jean Willson. The article focuses on realizing the value of engaging with a palliative care plan for Victoria as she becomes more frail. The article is positive, focusing on how to make the best out of Victoria's every day.
Thank you Jean and Victoria for sharing Victoria's journey.Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-22501524005429048662012-07-18T15:28:00.000+10:002012-07-18T15:29:14.537+10:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCZduv4zMTg7-kiApZUfd4uKD3hnqejUDZVUjspA90sc86tYcMBt-GCwsICfKHReQMgi8vp8PO0t5QZ2BztN5_f_nscOXTSob0lYG5834Gbbs4erEipg3pV-jAnyhixK63aa-8INR4AMGk/s1600/index.jpg" imageanchor="1" style="margin-left:1em; margin-right:1em"><img border="0" height="80" width="129" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCZduv4zMTg7-kiApZUfd4uKD3hnqejUDZVUjspA90sc86tYcMBt-GCwsICfKHReQMgi8vp8PO0t5QZ2BztN5_f_nscOXTSob0lYG5834Gbbs4erEipg3pV-jAnyhixK63aa-8INR4AMGk/s320/index.jpg" /></a></div>
Last week I had the pleasure to go to the International Society for the Scientific Study of Intellectual Disabilities World Congress in Halifax, Nova Scotia.
I presented on my PhD work on affect attunement, on my current HOP study, and work exploring culture and practices supporting adults with PIMD in Japan.
Here are my top ten favourite papers at the conference (in no particular order):
Eric Weber - Living as an adult with PIMD – The right place to live: necessarily in a family?.
Bea Maes & Carla Vlaskamp - Methodological challenges in building evidence based interventions for persons with profound intellectual and multiple disabilities.
Krysti deZonia – Public perceptions of profound disability.
Bea Maes - Palliative care for persons with profound intellectual and multiple disabilities.
Pauline Heslop - Can a Confidential Inquiry into a person’s death make a difference?
Miriam Roemer - Perception of persons with profound intellectual and multiple disabilities.
Nicola Grove – Patterns of co-narration in a personal story interaction.
Kaisa Martikainen and Katja Burakoff – OIVA interaction model: Supporting staff to better interaction with people with PIMD.
Genevieve Petitpierre – IEP goals and objectives of adults with profound intellectual and multiple disabilities.
Nan-chieh Chen – The telling body: Ethics, ethical skills and applications of caregivers faced with persons with PIMD.
Sui Sone – Living situation of adults with severe motor and intellectual disabilities (SMID) in Japan.
Hilary Johnson – Social communication and for adults who communicate at a symbolic but nonlinguistic levelSheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-50911988120310548142012-07-18T11:16:00.002+10:002012-07-18T11:16:09.798+10:00It's been a while since I've been on.
See below request from Andrew in England who is writing a book on young adults with PIMD and would like input from other countries...
"Andrew Colley" <andrewandgill.colley@btinternet.com> wrote:
Hello,
I am currently doing some research into educational provision for young people with profound and multiple learning difficulties (PMLD) in the US, Canada and Australia. If there is anyone out there who can help with info about Australia and would be interested in filling in a short questionnaire, please get in touch.
Many thanks
Andrew Colley
Edith Borthwick Special School, Bocking, Braintree, Essex, UK.Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com1tag:blogger.com,1999:blog-4935886480955329612.post-11208502239006655962011-10-31T11:42:00.003+11:002011-10-31T11:50:26.679+11:00Culture or absolute?<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRfUth5Daccgj2izq4IWyjZZB3_H03eHr8Hg585ZzmFdAqlOPrqOI1T2zAkFdZ8Tdvmzxb8nHy2c800tNGW9sKazBjyDy4d-PBynHeh_fVuNRI9K8p7fJG60xZ4mnrBB7IIoZ5LdaDiVSj/s1600/bathroom.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 400px; height: 299px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRfUth5Daccgj2izq4IWyjZZB3_H03eHr8Hg585ZzmFdAqlOPrqOI1T2zAkFdZ8Tdvmzxb8nHy2c800tNGW9sKazBjyDy4d-PBynHeh_fVuNRI9K8p7fJG60xZ4mnrBB7IIoZ5LdaDiVSj/s400/bathroom.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5669452264502802018" /></a><br />One of the things that struck me while visiting Biwako Gakuen was the amazing bathroom that I went into. There was submersible bath, a plinth that got pushed into a cavern to which a spray shower could be used, and a plinth for washing all in a large room. I heard the statements in my head that may be made by people in Australia "oh terrible, what about privacy". But in Japan concepts of privacy are very different. Communal bathing is not uncommon in the steaming hot Japanese bath. <br />It took me back to my visit to an institution in the Netherlands where shared bedrooms were used. I was challenged with the perspective of in whose best interest was it to be in a "private" bedroom particularly when you had a physical disability, vision impairment, and intellectual disability. I've been struck by this thought - what is the difference between a seclusion room and a private bedroom.<br />Traveling to different cultures is enormously challenging. What are the absolutes in life quality? What are our culturally imposed norms? What is in the best interest of the person with PIMD - what matters to them?Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-72407135478762422432011-10-31T11:18:00.003+11:002011-10-31T11:39:01.930+11:00Japan trip - some brilliant things happeningSo a couple of weeks ago I had the pleasure of attending the Asia-Pacific IASSID PIMD roundtable. There were presenters from Japan, Malaysia, Vietnam, Taiwan, and me. There were also many poster presentations. On the second day there was a service visit - more about that in a moment.<br />The trip was fascinating. I would love to spend more time translating the Japanese practice to the English speaking world. Japan has a large and long run association focusing on what they called SMID: Severe and Multiple Intellectual Disability. This includes families, doctors, allied health. It is very active. Within that is people with PIMD.<br />Additionally they have a large number of people considered to be Medical Care Dependent Group (MCDG). These are people who largely have tracheotomy, ventilation, IV sustenance, and other medical complications in addition to severe ID. It was fascinating finding out more about this group. I met some of these adults. They are a growing number in Japan. I need to find out more about their presence in Australia. Issues for them cut to the core of whose lives are seen as viable.<br />I had the pleasure of visiting Biwako Gakuen <a href="http://www.biwakogakuen.or.jp/">http://www.biwakogakuen.or.jp/</a> (this site is in Japanese, but you can get a general idea by running through it in a translator like Google Translate). I saw some excellent support here with the most profoundly disabled people that I have met. I observed and interacted with people in small http://www.blogger.com/img/blank.gifgroups (no more than 8). There always seemed thttp://www.blogger.com/img/blank.gifo be present engaged staff and volunteers attending to people on an emotional level. <br />One of the developers of the institution was Kazuo Itoga. A brief biography of him can be found at <a href="http://www.itogazaidan.jp/english/brief_biography/index.htm">http://www.itogazaidan.jp/english/brief_biography/index.htm</a>. He said "We are not seeking pity in bringing the light of the world to these children, rather polishing them since the shine brightly by themselves." <br />I'll write down further thoughts about the visit in the coming weeks...Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-84099411113644804772011-10-06T09:18:00.001+11:002011-10-06T09:18:58.876+11:00Off to JapanNext week Curtis and I are off to Japan for The first Asia-Pacific regional roundtable on Profound Intellectual and Multiple Disabilities (PIMD). I'll be speaking about what's happening in Australia (as far as I know). There will be presentations from Vietnam, Japan, and other places. I'm really excited to see what's going on locally!<br />Full report forthcoming.<br /><span style="font-style:italic;">20th-21st, October, 2011<br />Kyoto-Japan <br />Chair person: Prof. Tadashi Matsubasa<br />Professor and Chair of the Division of Severe Motor and Intellectual Disabilities, Kumamoto University Hospital<br />Sponsored by Japanese Society for Severe Motor and Intellectual Disabilities</span>Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com2tag:blogger.com,1999:blog-4935886480955329612.post-55830375596359107102011-10-06T09:05:00.003+11:002011-10-06T09:11:39.436+11:00Involve Me<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIzyBda9tL3j0PybQ4zRd6hjNxSQNnfyGAUigGQpNnksx7AqndUKHeGJCHFraQQBK8aE8daeE8J4qKTkun8wwkkSYAbDNVP2h6K-re2IOFIm0_zhajXbrwUgcON85vLXN-Wly4Zo5LO6mu/s1600/Involve+Me+practical+guide+cover.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 150px; height: 194px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIzyBda9tL3j0PybQ4zRd6hjNxSQNnfyGAUigGQpNnksx7AqndUKHeGJCHFraQQBK8aE8daeE8J4qKTkun8wwkkSYAbDNVP2h6K-re2IOFIm0_zhajXbrwUgcON85vLXN-Wly4Zo5LO6mu/s320/Involve+Me+practical+guide+cover.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5660133972037240658" /></a><br />Great new resource from Mencap in UK. A beautiful multimedia package. Check out the website at <a href="http://www.mencap.org.uk/involveMe">http://www.mencap.org.uk/involveMe</a>. <br /><span style="font-style:italic;">The Involve Me resource aims to increase the involvement of people with profound and multiple learning disabilities (PMLD) in decision making and consultation. The resource is the result of a three year project, supported by the Renton Foundation and run by Mencap in partnership with the British Institute of Learning Disabilities (BILD).<br /></span><br />People with PMLD and staff took part by learning about and using different approaches to communication: sharing stories, creative communication, peer advocacy and multimedia advocacy.<br />I also requested the DVD and got my hot little hands on it yesterday. If you do get hold of it check out the Robbie video. It's a great video of a man who enjoys throwing a spoon and this is valued by staff rather than seen as a problematic behaviour - I love it. One day when I get time I'd love to do something on the valuing of idiosyncratic skills!Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0tag:blogger.com,1999:blog-4935886480955329612.post-55360359376740581862011-08-15T15:18:00.001+10:002011-08-15T15:18:59.065+10:00back on board slowlyJust a quick note to say sorry that has been so many months since I last wrote. On April 10th 2011 Keith and I gave birth to a beautiful baby boy: Curtis Calum McVilly.
<br />We're all going well.
<br />The experience has made me think about the developmental model that we often use to aid our understanding of adults with PIMD. Curtis at 4 months has communication skills that far surpassing the communication skills of many of the people with PIMD that I meet. He has intact vision and hearing, which contributes to his ability to gaze, smile, socially reference, and perceive distant cues. In these things the developmental model clearly does not fit in applying to adults with PIMD. However, I think some of things I do to engage with him could make sense in engagements with adults with PIMD: visual tracking of close items, locating sounds in space, using touch to reassure and calm, the use of sounds to share emotions together, the swiping of close objects.
<br />I think I need to keep thinking about this - where the developmental model is or isn't helpful... Sheridanhttp://www.blogger.com/profile/09629253279544051200noreply@blogger.com0