Wednesday, July 18, 2012

Last week I had the pleasure to go to the International Society for the Scientific Study of Intellectual Disabilities World Congress in Halifax, Nova Scotia. I presented on my PhD work on affect attunement, on my current HOP study, and work exploring culture and practices supporting adults with PIMD in Japan. Here are my top ten favourite papers at the conference (in no particular order): Eric Weber - Living as an adult with PIMD – The right place to live: necessarily in a family?. Bea Maes & Carla Vlaskamp - Methodological challenges in building evidence based interventions for persons with profound intellectual and multiple disabilities. Krysti deZonia – Public perceptions of profound disability. Bea Maes - Palliative care for persons with profound intellectual and multiple disabilities. Pauline Heslop - Can a Confidential Inquiry into a person’s death make a difference? Miriam Roemer - Perception of persons with profound intellectual and multiple disabilities. Nicola Grove – Patterns of co-narration in a personal story interaction. Kaisa Martikainen and Katja Burakoff – OIVA interaction model: Supporting staff to better interaction with people with PIMD. Genevieve Petitpierre – IEP goals and objectives of adults with profound intellectual and multiple disabilities. Nan-chieh Chen – The telling body: Ethics, ethical skills and applications of caregivers faced with persons with PIMD. Sui Sone – Living situation of adults with severe motor and intellectual disabilities (SMID) in Japan. Hilary Johnson – Social communication and for adults who communicate at a symbolic but nonlinguistic level
It's been a while since I've been on. See below request from Andrew in England who is writing a book on young adults with PIMD and would like input from other countries... "Andrew Colley" wrote: Hello, I am currently doing some research into educational provision for young people with profound and multiple learning difficulties (PMLD) in the US, Canada and Australia. If there is anyone out there who can help with info about Australia and would be interested in filling in a short questionnaire, please get in touch. Many thanks Andrew Colley Edith Borthwick Special School, Bocking, Braintree, Essex, UK.